So a little bit has happened since my last update, not too terribly much though.
The medication I had been on helped a little bit. It gave me more good days than I would normally have, but the days in between still sucked. So when I ran out of samples, my doctor at the time decided to just try a different med, since it's nearly impossible to get insurance to cover the other stuff anyway, and he wasn't willing to fight it.
Second medication, a standard beta blocker, made me feel like crap. I gained weight rapidly (about 5 pounds in 3 weeks), was bloated, significantly more fatigued, and my eyes always hurt. So I weaned off of that as soon as
So my doctor FINALLY put me on a medication last Tuesday! I'm now on Corlanor, which is technically a heart failure medication, but is used off-label to treat POTS. It pretty much just regulates me heart rate. So instead of it being at 150+ while standing, it usually sits around 70.
I'm currently flaring because it's that time of the month, and most women with POTS flare during their period. But before it started, I was feeling some real improvements, which is very surreal, and very emotional. I almost cried when I got back from taking the dogs out to potty, and realized I wasn't severely winded and exhausted from going up the 7 steps to our
Ayo, we're gonna do a little update here. Some of you may have noticed how dead all my makeup pages are, and this is for a very simple reason. I haven't done makeup in months. And this is for a much more complicated reason. I've developed a chronic illness known as Postural Orthostatic Tachycardia Syndrome, often shortened to POTS. The symptoms range, but my primary issues are severe presyncope upon standing (have collapsed once, but didn't completely faint), chronic fatigue, and tachycardia. For instance, I'm just sitting here, and my heart is at about 130 BPM. I was an athlete before this went downhill a few months ago, my resting heart rat